The Wordsmith

My 1st MRI

In dreams

Patience (the ancient tree)

 

i cannot tell 

which is more patient 

the tree

like gnarled old fingers

sun-beached and 

long since passed

or the days and nights

which move around it

we witness the blue sky

so rich and clear

and mistake our need

we forget tolerance  

we say

“get out of the way 

you old tree

I want to see the blue sky

but the tree

is the gentle one

by day

it marks the earth 

with the movement

of the sun

across the sky

not rushing it

letting it be

moment by moment

and at night

it stands 

almost sentry-like

keeping watch 

waiting

it never says 

“you are gray today

bring back

your blue sky”

if it is unable

to mark the earth

as a sundial would

it just waits

gnarled and old

like it was yesterday

as it will be tomorrow

Jose

Perhaps this is survivor’s guilt.

Our situations were identical in almost every way. 

He was diagnosed with testicular cancer. His staging was the same as mine. He, too, experienced a recurrence that presented as a brain lesion and opted for a stem cell transplant. 

This is where our paths split apart. Shortly after his high-dose chemo treatment commenced, prepping his body for the transplant, he became increasingly confused and disoriented. After sets of scans were performed, it became evident that, though the heavy rounds of treatment were well underway, several more lesions had presented themselves in his brain. The decision was made to stop treatment and return home, enter hospice care, and be around loved ones. Shortly after he decision was made, he passed away. 

Even in writing this, I don’t know where to begin opening up my emotional state regarding his journey and mine and where they veered off and split from one another. I shudder thinking about the fact that my lesions could have multiplied, too. Or, for that matter, the one that did present itself could have been in such an area that it was deemed inoperable, leaving me with more complications than just a stroke and a paralyzed arm. (“Just a stroke…”) What damage could my tumor have caused had it been slightly to the left, to the right, etc? Was I naive to postpone my 2nd round of salvage chemo and head out to visit Dr. Einhorn in Indianapolis to get a second opinion? Was this delay dangerous in such a way that… it’s too much to think about. 

These questions haunt me. They wake me in the middle of the night. Even more so is one I can’t escape asking repeatedly: why am I here and he isn’t? Why am I alive and he … and he isn’t? 

I never understood survivors’ guilt. I had heard about it but never truly understood it. Yes, on a larger scale, anyone who survives cancer thinks about all those who haven’t and, in one way or another, has that feeling. In most cases, guilt might be too harsh, but this particular scenario is apt. 

I loop my posts back around. With my last sentences or so, I always seek to return to the overall idea. Is this good writing? I’m not sure. I do so to keep everyone along the way. My writing tends to drift a little far out, so bringing things full circle will hopefully lead people to say, “Oh, now I understand why he wrote…”  However, with this post and the subject matter herein, I can’t. How do I bring this back around? What closing line or thought can I inject here? Nothing can sum this up or deliver on one’s need for coherency as none of this makes sense… 

Perhaps this is survivor’s guilt. Maybe it isn’t so much about feeling remorse for those who have passed at the hand of this insidious disease, but rather the inability to make sense of it, to articulate it to ourselves and others. As with this post, I want to bring it back around so it feels wholly desperate and there is some understanding to accept the madness of this life and the injustices that rear their heads. But I can’t. Everything is left hanging, nothing but loose ends, dangling strands that I keep tugging at…   

Be well on your journey, Alex

June 13, 1994 ~ June 30, 2020 (age 26)

3rd anniversary of my stem cell transplant

National Cancer Survivor Day

The irony of April 1st

I went to bed last night, frightened of how I might awake today.

April 1st is the date I was diagnosed with testicular cancer in 2016. It is hard to forget such a date, naturally.

The irony, of course, is April It’s Fools Day, but no one forgets such a life-altering occurrence.

I awoke relatively early. I did not get up for the day, just remained in bed, not wanting to stir and disrupt the thought that was on a loop in both my heart and mind;

“I’m a f*cking warrior!”

It wasn’t one thing in particular that I was focusing on or directing this thought towards. Rather, it was the years since my diagnosis and all the trials I have overcome!

The image is my Scottish ancestral crest. The motto which circles the crest is Fortitudine, which means “with fortitude” in Latin. I am proud of this and have it tattooed on my forearm. Every day, I recognize that my own fortitude, courage, and bravery are greater than I will ever know!

Image credit: Unknown

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