i waited for you in the park.
when you arrived,
you held me,
and your cold nose pressed against my neck.
you nuzzled me,
and our skin quickly
adapted to one another;
mine cooled, or yours warmed
i’m not sure.
i was happy and
excited about what we might become.
the sun and an early spring day
marked the passage of time
and life moving forward.
these were early days—before
waiting became an annoyance,
before illness,
when i didn’t understand what
holding my breath truly meant.
the anticipation of test results slowed time,
and hours in the treatment chair
felt like lifetimes.
after my first seizure,
when the illness forced my world apart,
time shifted.
you found me
coming to the emergency room
to gather the pieces.
fresh from outdoors,
from the chill of an early
chicago spring day,
remembering this:
your cold nose
pressing into my neck,
i can still feel it as time slowed.
and why can’t these moments
be eternity?
when two bodies
seek a common temperature,
can’t this search last forever?
Tag: cancer survival
The wind through an open door
At night, lying on my back, I stay awake and listen to the rattling of my lungs.
A wheeze, a strange resonating noise—like damp leaves—if mold had a sound, if abandoned rooms with winds spoke.
I insist I am okay.
I’ve always said, “I’m okay.”
From my youth, my father’s glare, to now, the groan of my lungs.
But I knew now I wasn’t; my body was revealing signs of sickness.
When had climbing a flight of stairs become a challenge?
Why was I losing weight?
Why did I wake up in the morning without the will to start the day?
The cravings of a young man—sexual longings, morning erections, and pleasuring myself in the stillness of the night—these were memories.
Someone my age shouldn’t be dealing with these issues, right?
I am a young man, strong and proud with rugged New England blood, generations of good health, and a life without doctors.
I kept telling myself, ‘Everything is okay.’
I kept repeating, “Everything will be okay.”
But it was never just an irritation in my throat.
The cough wasn’t just spring allergies.
“Hello,” I say.
“You are closer now.”
The wind through an open door has achieved form.
You have become a presence, a physical form I can’t ignore.
“Hello, Jeremiah.”
You’re in the hallway as a guest now, and you’ve even taken off your shoes.
How could I not welcome a guest?
A caller who had been inside, who had been within, was now at my door.
Cradling me as I sit on the shower floor, coughing blood into the drain.
Wrapping me in the steam of a scalding shower that never warms.
You are the fading winter, the arriving spring, and the buds on trees along West Thorndale.
You’re sitting next to me on the L.
Threads


My sister purchased sweatpants and a cozy sweatshirt for me during the first few weeks of my initial treatment in mid-April 2016. Initially, I didn’t want to wear them to treatment; I wanted to attend each grueling session dressed in a button-down collared shirt and trousers that blurred the line between dress and casual. I liked to look presentable—I needed to.
I arrived at the treatment clinic directly from Chicago, where I worked on completing an MFA, actively attended daily classes, wrote my thesis and art history paper, and generated visual work in general. As such, I consciously dressed in a way that, I hoped, exuded professionalism and spoke to my qualities. There was, however, another very conscious act; I wanted to maintain this daily dress code as a ‘fuck you!’ to cancer.
My work week was, in fact, a full-time job; I was in the treatment center Monday through Friday from 8 am to 4:30 pm. I often arrived before my oncologist and was in my chair, books, and laptop set up and ready to power ahead and finish an art history paper while they were still mixing up my toxic chemo cocktail. On one occasion, I heard my oncologist ask my nurse, “What is he doing over there?” she replied, “he’s working.” As I said, it was my full-time job; I was going to dress the part, grind away, and flip the bird to cancer.
But treatment took its toll.
The nurse who at one time informed my oncologist I was working was now mainlining me with Ativan because the 40-hour week was causing such severe panic attacks.
“It’s Friday; we expect you to be like this,” she said.
Was that a carte blanche to unhook my IVs and run screaming from the clinic? Perhaps, but I didn’t have the energy to do so. Instead, I requested a blanket from the warmer, curled up, and cried.
The following week, I began wearing my new sweatpants and sweatshirt.
No one took a second look at my attire. In fact, I received more attention when I showed up for treatment dressed like I was going in for a day as a data analyst than when I appeared in sweatpants, prepped for an 8-hour treatment cycle. The clothing I usually would only sleep in became my new go-to look on most days.
But it was more than a look, obviously, and more than physical comfort, which became increasingly important as the weeks dragged on. The ease of shedding one pair of sweatpants for another can’t be overstated when depleted of all energy sources.
Since 2016, I have worn the same few pairs of sweatpants to bed when lounging around the house and even while walking on the treadmill. After each washing, I am surprised that they remain intact.
Recently, when I visited my sister, she saw the state of my sweatpants and immediately ordered new ones. She’s like that; without hesitation, she will act in a way that might be simple but can change a person’s entire day – usually for a lot longer.
When I returned home from my visit, the package arrived within a day with various items, and yes, including sweatpants.
With their arrival, I knew it was also time to part with the old pairs. I folded them neatly, ceremoniously, as if I were going to lay them to rest somewhere sacred and not put them in the trash as I did. When I returned to my room, I saw the new sweatpants and, though I partly expected this, became incredibly emotional. For undeniable reasons, there is an aspect of sentimentality brought about by years of owning something. However, when a particular thing has wrapped you up, encased you, and held you literally in its fibers during your most vulnerable times, its presence surpasses sentimentality. That, paired with the endless generosity of my sister, made giving up the old apparel and welcoming the new bittersweet.
It is human nature to want the reassurance that something or someone will catch us if we fall; if we stumble, somebody will help us. The unconscious knowledge comforts us on some primordial level, that a hand will reach out and grasp us and that we can let go.
After trying on my new sweatpants, feeling that strange pleasure of fabric that is both too crisp and refreshingly new, I understood that the garments my sister initially gave in 2016 were indeed that hand reaching out. Somewhere between ceremoniously discarding the well-worn apparel and snipping the tags off the new threads, I understood that the tiniest gesture holds the most significant importance.
I had to remain in the car when my sister purchased the first set of various items for me. I was too ill to go into Old Navy. I sat curled up on her car’s front seat, craving the comfort of my bed, the relief an anti-nausea medication would bring. Her return with multiple bags containing an assortment of clothing was her way of offering me comfort; it was one of many, but this particular gift came during the first stages of my treatment when I felt particularly rough.
We arrived home, and though it was several years (and another lifetime) ago, I can remember the comfort of my new sweatshirt. Though I have since parted with the pants, I refuse to leave behind the sweatshirt and all the memories, good and bad, that it conjures up.
Things change you…

When I smell diesel exhaust, I return to a bus station in Cuenca, Ecuador. I am 11, traveling with my mother. We are visiting my uncle, who was studying there at the time.
Whenever I smell diesel fumes, I am there. I can hear the people yelling out the bus’s destinations, some just boys, perhaps the driver’s son. And other voices are clamoring for space in the cacophony, selling everything from chicklets to newspapers.
It was a culture shock to the highest degree. Before going on the trip, I went to get my passport. I had to take the morning off from school. The lady who was processing it asked where I was going. Because I was wearing my school uniform, I said, “I’m going to school.” I thought she meant where I was going after the appointment.
That’s how innocent I was before the trip.
Things change you.
I saw more poverty in a square mile than I could understand and was then led through an open-air meat market. The smell of diesel fumes mixed with the sight of limbs and heads of various animals while still trying to adjust to roughly 8,000’ above sea level made me want to get sick, but I didn’t. At that young age, a strange and unhinged understanding came over me. If I vomited, I would feel guilty because my stomach was full, and some of the children I had seen looked like they hadn’t eaten in days.
Diesel exhaust will never be diesel exhaust; it will be a time machine.
When I see these clouds (attached photo / Facebook “memory” Jan 30, 2017), It isn’t only that I step onto the cold deck and hear the wooden porch boards protesting against the frigid weather, but I hear my oncologist,
“…the lungs.”
The day is frigid. It’s the type of cold that you can taste before you can feel as if Mother Nature wants to give you a sampling of it before the entire course. (Mother Nature doesn’t care about dietary restrictions.) I take this photo casually. It’s a digital world; I can take dozens, but I remember taking only one.
If I had taken dozens, would I have dozens of different memories?
Unlike diesel fumes, there is nothing discernable about these clouds. They are generic, and they are fleeting. They are ephemeral.
“… the lungs.”
I was going in for an early morning MRI and CT set of scans. I was six months post-treatment. These were routine. Routine is normal, is standard, is regular.
I wanted to remain on the deck, to stay and taste the day and watch these clouds shift and morph into… into anything.
“… the lungs.”
Certain clouds are no longer clouds; they are time machines.
Events change you.
A few days after my scans, when I met with my oncologist, he said,
“… the lungs. It looks like one of the nodules has grown.”
That was seven years ago.
Life changes you.
When I smell diesel, I am transported to another world.
When I see clouds like this, I become someone else, a pre-recurrence Jeremiah, a pre-transplant Jeremiah.
I have witnessed many cloud patterns like this since Jan 30, 2017. They constantly shift; some become rich blue, while others become threatening gray.
Their impermanence serves as a constant reminder of the transient nature of things.
Falling in love with yourself again is a continuously evolving relationship that will always be fulfilling

As a cancer survivor, it takes time to love the body you felt betrayed you.
Then, however, you begin to see how hard it worked to save you.
Falling in love with yourself again is a continuously evolving relationship that will always be fulfilling!
Do you want to live forever?

The Wordsmith

I fancy myself a bit of a writer, a wordsmith. I never had the confidence I do now to write. I was always worried about my grammar and punctuation. More than anything, I was worried about opening up and spilling it all out, letting the floodgates open and setting for a deluge of emotions, feelings, and thoughts that would potentially leave me exposed to criticism or judgment. After diagnosis, I stopped caring. The last thing I would concern myself with was grammar. Next in line, or perhaps going hand in hand with grammar, were the thoughts of others. I was already emotionally raw on so many other levels; I might as well leave it all wide open.
Today I met with my oncologist, and, as I expected, it was decided to “keep an eye” on things. The recent MRI showed hemosiderin deposition in the brain, which isn’t as bad as it sounds. These deposits transpire after bleeding has happened, which can occur after any traumatic injury to the brain. The bleeding leaves behind stains and, in time, is broken down by the body and left behind as iron deposits. This is my basic understanding. There is some question as to whether or not this could be residual neoplasm, leftover cancer cells. This raised the question in my mind as to whether or not this is why my tumor markers are rising ever so slightly. But, as stated, we’re just going to keep an eye on it.
keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it. keep an eye on it.
This is when the longing to be a wordsmith falls away.
The old and young. Young and old. What a madhouse here. No rhyme or reason at the cancer clinic. I sometimes want to ask, in a clandestine whisper, ‘Hey you, ya you! whatcha in for?’ ’cause that’s what it’s like. I’ve never been in jail, but I can imagine what it is. I’ve been in a different kind of prison for four years, or has it been longer? I can’t remember. That’s the problem with these days that blend into months and then merge into years; they all look and feel the same. It’s worse in treatment. It’s always worse in treatment. Even today, a beautiful day, and I swear it was May, yet I wrote March 24 on my intake paperwork. “So, doc, ain’t I done good?” I ask as he studies my file and randomly looks up at me. “I’ve been good, I swear! I’m free to go, right?” I want something. I am seeking something; everyone is seeking something in treatment or after treatment. Craving the words, “You’re good!” Oh yes, they call us survivors; what a strange name. I’ll know what this something is, what it’ll be once I get my claws sunk into it. “Well, why don’t we keep an eye on it.”
I schedule a follow-up, bloodwork and scans for a later date. But it wasn’t me. I planned them for my body to be aware of my physical being and its course. But emotionally and psychologically, cancer is no longer.
To be clear, emotionally and psychologically, cancer no longer has me.
Follow-up scheduled: COMPLY (Y/N) Y
Current objective: to be and enjoy being? COMPLY (Y/N) Y
Worrying Overridden: COMPLY (Y/N) Y
Outer Stability Seeking: COMPLY (Y/N) N
Inner Stability Seeking: COMPLY (Y/N) Y
(Physical) Cancer Status: Tracking/Monitoring
(Emotional/psychological) Cancer Status: NED (No Evidence of Disease)
In dreams
I’m unsure when it started, but I have felt tenderness and a dull ache in my testicle for the last few days. Naturally, this has set off every alarm in my mind; every possible worry and concern has crept back into the light. After four years, I would have assumed that the fear of a recurrence would have lessened, but it has come raging back with this feeling.
The other night, I dreamt that I was back in the treatment chair, and the nurses were trying to fit in an IV. Each nurse attempted dozens of times to no avail. Finally, the nurse, who, in waking life, I see every time I go for labs, said, “Jeremiah, I’m sorry, but we can’t fit the IV. We’ll try again tomorrow.” Then, I shifted dreams, but I am unsure what followed.
In my unconscious mind, these worries are ever-present; they have always been. It isn’t just with this feeling and sensation. My dreams regularly reveal so much; every emotional state, good or bad, is magnified tenfold within my dreamscapes.
I dream journal. I try to do so every day. I have stopped writing out the dreams in a descriptive manner. I don’t set out to write short stories-like entries when I awake with one still fresh in my mind. Instead, I pull imagery from them. I snag tidbits of information, perhaps the color of an object or a particular look I receive. However, with the dreams that revolve around cancer, I am tangled up in internal sensations and feelings more than anything external. Something in the dream mentioned above, which has occurred in various iterations for years, prevents me from being treated. I want to hang on, stay within the dream, and ride it to the end. Would it make sense once I got there, wherever there is? What answers would I receive? Would it make sense – would any of this make sense?

Perhaps this is survivor’s guilt.
Our situations were identical in almost every way.
He was diagnosed with testicular cancer. His staging was the same as mine. He, too, experienced a recurrence that presented as a brain lesion and opted for a stem cell transplant.
This is where our paths split apart. Shortly after his high-dose chemo treatment commenced, prepping his body for the transplant, he became increasingly confused and disoriented. After sets of scans were performed, it became evident that, though the heavy rounds of treatment were well underway, several more lesions had presented themselves in his brain. The decision was made to stop treatment and return home, enter hospice care, and be around loved ones. Shortly after he decision was made, he passed away.
Even in writing this, I don’t know where to begin opening up my emotional state regarding his journey and mine and where they veered off and split from one another. I shudder thinking about the fact that my lesions could have multiplied, too. Or, for that matter, the one that did present itself could have been in such an area that it was deemed inoperable, leaving me with more complications than just a stroke and a paralyzed arm. (“Just a stroke…”) What damage could my tumor have caused had it been slightly to the left, to the right, etc? Was I naive to postpone my 2nd round of salvage chemo and head out to visit Dr. Einhorn in Indianapolis to get a second opinion? Was this delay dangerous in such a way that… it’s too much to think about.
These questions haunt me. They wake me in the middle of the night. Even more so is one I can’t escape asking repeatedly: why am I here and he isn’t? Why am I alive and he … and he isn’t?
I never understood survivors’ guilt. I had heard about it but never truly understood it. Yes, on a larger scale, anyone who survives cancer thinks about all those who haven’t and, in one way or another, has that feeling. In most cases, guilt might be too harsh, but this particular scenario is apt.
I loop my posts back around. With my last sentences or so, I always seek to return to the overall idea. Is this good writing? I’m not sure. I do so to keep everyone along the way. My writing tends to drift a little far out, so bringing things full circle will hopefully lead people to say, “Oh, now I understand why he wrote…” However, with this post and the subject matter herein, I can’t. How do I bring this back around? What closing line or thought can I inject here? Nothing can sum this up or deliver on one’s need for coherency as none of this makes sense…
Perhaps this is survivor’s guilt. Maybe it isn’t so much about feeling remorse for those who have passed at the hand of this insidious disease, but rather the inability to make sense of it, to articulate it to ourselves and others. As with this post, I want to bring it back around so it feels wholly desperate and there is some understanding to accept the madness of this life and the injustices that rear their heads. But I can’t. Everything is left hanging, nothing but loose ends, dangling strands that I keep tugging at…
Be well on your journey, Alex
June 13, 1994 ~ June 30, 2020 (age 26)
3rd anniversary of my stem cell transplant

This summer will mark the 3rd anniversary of my stem cell transplant! It is hard to believe that so much time has passed since that long and very trying span of time, from June to August of 2017. So much has come to pass; so much growth on a personal level, so much understanding and acceptance, so much physical and emotional healing.
Even if I look back to just half a year ago I am left scratching my head asking, ‘who was that?’ I suppose this is normal, but I am hyper-vigilant of the passage of time, as I’m sure every cancer survivor is. It isn’t so much that I’m counting every second and rejoicing at every tiny gulp of fresh air I am graced with. No, it isn’t like that. Naturally, I am very lucky. However, I feel graced with, if that’s still the most suitable term I want to use here, with the awareness and shifts within myself. Call it “soul” or “spirit”… whatever word you’d like, I won’t label it so as not to taint one’s vision of how I’m perceiving this “inner” part.
Several months ago, I was experiencing a nervous breakdown and was admitted to a hospital in France. Really, who was that? I needed that, of course. I needed to bottom out. My body was already working on slowly repairing itself, but I hadn’t yet allowed myself to crash on an emotional and psychological level. My inability to hold on slipped and I did… I crashed hard – very hard. As difficult as it might have been, this was when the shifts began to occur.
3 years ago, I was watching fireworks from Massachusetts General Hospital’s cancer ward. I tried to sweet-talk one of the nurses into getting me a beer so I could, like a lot of my fellow Americans, sit and sip a beer while watching the display, all the while exclaiming, “Ohh!” and “Wow!” She said no and gave me another anti-nausea med and an ice cream. The fireworks didn’t live up to their hype. I heard good things; a lovely display of colorful explosions seen from the 10th floor of a building overlooking the Charles River. It sounded amazing. Though various buildings obstructed our view, we couldn’t see The Charles. There were perhaps ½ a dozen patients and nurses. It was an interesting and also eerie sight, all of us in masks and gowns; the patients seemed quiet, in that middle ground of toxicity-induced psychedelia and being fully present. I shouldn’t generalize, but I often found myself in this state, always ready for what I am unsure. All of us were tethered to our IV poles, which pumped an alarming amount of chemo agents into each of our bodies or flooded us with other various fluids. The nurses talked amongst themselves, texting and doing things normal people do. I don’t remember the grand finale. The other patients and I left the room with the promised vista of fireworks overlooking the Charles, wheeling their IV poles alongside us. I heard the muffled explosions from my sealed-off room, just a gentle murmur that was barely audible underneath the continuous hum of the air filtration system.
Every 4th of July I remember this. I remember that room on the 10th floor of Mass General’s cancer ward and the patients wheeling about IV poles, hoping to see a clear view of fireworks but, in the end, not really caring. Or maybe I cared in that way cancer patients care about things that, though they would be nice, weren’t of the highest priority at the moment. Or perhaps, like me, we all wanted to enjoy the goddamn fireworks while drinking some shitty beers and be normal, feel normal… whatever that was at the time. But alas, we all returned to our rooms to resume our treatment or our sleepless nights of nausea and delirium, or the darkness-induced existential terrors, fears, and tears, to everything (everything!) else that takes precedence over fireworks.
I don’t look back on it now, every summer, every 4th of July, and feel a sort of unease or anger, etc. I feel this reaction with other things, naturally. Other dates are inescapable; those, too, have lost their bite. The day after Mother’s Day 2017, I had a stroke, which paralyzed my left arm, postponed my transplant, and sent me to the hospital for brain surgery. I watched the solstice sun (image attached) lazily creep across the sky from my room at Mass General.
These are there and solidified in my personal journey and my personal history. They’re not so much pitfalls anymore in the yearly cycle, so much as pitstops that allow me to recess my place within all this and the growth within myself.